A steering commitee comprised of national experts and representatives from patient organisations has been convened to guide BADGEM and determine its projects, monitor performance, and coordinate activities for the best outcomes for UK patients with rare genetic skin diseases. To date, three sub-groups of BADGEM have been established. These sub-groups are focused on the development of: (i) informatics infrastructure for clinical registers; (ii) diagnostic and clinical signposting; and (iii) clinical trials for genodermatoses.  

BADGEM Structure: