BADGEM - UK-wide clinical network dedicated to genetic skin diseases
BADGEM (the British Association of Dermatologists Dermatology and Genetic Medicine) is a newly formed UK-wide clinical network dedicated to rare genetic diseases of the skin. Established jointly in 2013 by the British Association of Dermatologists (BAD) and the Centre for Dermatology and Genetic Medicine (DGEM), BADGEM is currently led by Professor Irene Leigh and is governed by a steering group comprising of national experts in the UK.
BADGEM had been set up as a company which is light touch as two officers of BAD are the company directors (previous BAD Academic Vice President - Irene Leigh and treasurer - Richard Groves) but its functions are determined by the steering group. In order to drive progress forward in key areas, three working subgroups of BADGEM have been established: (i) Informatics/Disease Registers, (ii) Clinical and Diagnostic Signposting and (iii) Clinical Trials, each led by experts in the UK.
100 000 Genomes Project from Genomics England
Since 2013 Genomics England, part of NHS England, has been aiming to bring benefit to patients whilst still maintaining ethical considerations. …Read More
Rare Diseases Registries Workshop
21-22 March 2017, Madrid, Spain
This workshop is an opportunity for researchers to share their knowledge about their registries and integrate with other EU based …Read More
Wellcome Genome Campus Advanced Courses
This meeting will be devoted to the rare disease and the theme is "Discovery and Care"
5 - 7 April 2017
Wellcome Genome Campus, Hinxton, Cambridge, UK …Read More
BADGEM Clinical Meeting 2017 will be held at the Annual BAD Conference at Liverpool on Wednesday 5 July 2017
There will be international speakers including Prof Birgit Lane, Prof Cristina Has and & …Read More